I took Hazel to Shriner's Hospital last week for a second opinion. Here is what they had to say:
1. The plastic brace Hazel's in now isn't going to work. If she only wears that, her foot will regress. She needs a bar brace to control how much she can move her foot. :( However, they have one that seems a little better than what Hazel was in before. The bar is lighter, and it's attached with suede straps instead of leather shoes.
2. Her foot is not completely corrected, and she should go through two or three more casts before she moves on to the brace.
Then I went to Primary's (where we've been going) a couple of days later, and the doctor there told me Hazel's foot looked fine.
But after a lot of prodding, she admitted that the plastic brace is not as effective, and Hazel will have to wear it full time for a year, not just three months like with the bar brace. And if down the road it doesn't look like Haz's foot is getting better, then she will need to go back to the casts. But she thinks Hazel's foot looks just fine right now.
While I was at Shriner's, I saw a little boy (one or two years old) with club feet, trying to walk down the hall. He walked on the outsides of his feet, and had to hold his mom's hand to keep his balance. It was really sad. I watched that, and I knew I needed to do everything I can now so that Hazel doesn't have to struggle to walk later.
Thus, I think we're going to switch over to Shriner's. I'm still in the ponder and pray stage, but that's what I'm leaning towards. So frustrating. I really wanted to have them tell me Hazel's foot looked perfect, and she didn't need to wear a brace at all anymore. Dream on, huh?
They were ready to put Hazel in a new cast then and there, but we had to put things on hold while we go to ITALY! The chica grows too fast to stay in one cast for that long. So, we'll keep wearing the plastic brace for now, becaues it's better than nothing, and then get intenseive when we get home in a few weeks. Blah blah.
7 comments:
I'm sorry Ang,... It really is going to be better in the long run to take care of it now though. Keep praying,.. You're doing great at making the right decisions if my opinion means anything. :)
The sooner you get it taken care of the sooner hazel can go on to be the regular happy baby she is?
On the bright side, she doesn't have dwarfism and have to go through multiple multiple casts/surgeries throughout her life. I've been watching little people just married on tlc or something like that and anytime I see pics of those little babies in casts it makes me sad. At least Hazel's will only be 3 months one time.
Also, Yay for Italy! :)
that question was supposed to have a right? at the end,.. hahaha. sooner it's started the sooner it's over right?
I think its a good call to switch to Shriner's. Boo Children's. Too bad, sounds like that doctor there was trying to tell you what you wanted to hear by putting off the bad news---WRONG LADY! You gotta tell people the truth and then help them handle it, not sugarcoat and avoid it! Argh.
At least the people at Shriner's told you what they can offer Hazel so that you can choose what kind of brace/shoes/straps you want to put her in and make an educated decision about the time issue (3 months of hardcore vs 12 months of softcore)
I'm glad you're getting answers.
i'm with you--just do it, do it right, and get it over with. doesn't sound like it will be fun, but hopefully afterward you'll be glad you endured.
You can do this, Ang. You are one tough Mama, and Hazel will thank you later -- when she can actually talk and tell you how much she would hate wearing a brace or casts or walking funny. I'm proud of you, girl. :) Hope you are LOVING Italy and Todd!
I am sorry that you have to deal with this - I know the frustration, concern and fear that accompanies a physical challenge in your child - you just want to make it all better and make it go away as fast as possible. I feel like I have really come to grips with Talmage's allergies, but then on days like today when he doesn't understand why he can't eat a cookies that his brother can, it is harder to accept. Hang in there and I hope and pray that all will work out!
So sorry Angie! We are praying that you will get the help you need now so you guys don't have go through this again.
We feel for you.
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